Ride for Amyloidosis Foundation a Success!

Ride for Amyloidosis Foundation a Success!

Congratulations to everyone who participated in the “Ride for Amyloidosis” spin class at CycleBar in Cincinnati, OH on Sunday, October 16, 2016.

This fundraising event was in memory of Mary Lynn King, who passed from amyloidosis in August, 2013. Her daughter Beth organized the fundraiser to bring awareness to the disease and raise funds for research.


They had 30 riders and many commented that they “could feel the love in the room”. What a great way to honor Beth’s mom. Thank you for raising awareness and donations for our research fund.

We appreciate your support!

Amyloidosis Foundation Golf Outing

Amyloidosis Foundation Golf Outing

Thank you to everyone who participated in our annual AF golf outing at The Fountains in Clarkston, MI on Friday, September 30, 2016. We were lucky enough to have most of the rain hold off until we finished!


Still, a great day was had by all – our raffle had over 40 baskets and gift certificates for our participants, including many families affected by amyloidosis. Special thanks to Prothena for being a sponsor as well.


Save the date – our event next year will be on Saturday, May 20, 2017.

judylessardsign baskets img_0004

Amyloidosis in the News

Amyloidosis in the News

The Pittsburgh Post-Gazette wrote an article highlighting Dr. Darcy Tannehill, amyloidosis patient and chairwoman of the Pittsburgh Research Benefit on October 28, 2016 at the Montour Heights Country Club. Here is her story.

2016 Pittsburgh Amyloidosis Research Benefit

2016 Pittsburgh Amyloidosis Research Benefit

The Amyloidosis Foundation is proud to announce the 2016 Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 28. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient and Pittsburgh resident, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

MHCC photo

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.  Hotel reservation information is below.


Purchase tickets here


Guest Rooms

We have a block of rooms reserved for this event at the Sheraton Pittsburgh Airport Hotel. They will provide complimentary transportation to and from the event as well.

Please call 412/262-2400 to reserve your room and please note that you are attending the Amyloidosis Research Benefit on October 28. Here is a link to the hotel: Sheraton Pittsburgh Airport Hotel.

For more information please contact us at: info@amyloidosis.org





The Prieber Open Supports Amyloidosis Research

The Prieber Open Supports Amyloidosis Research

On August 13, 2016 more than 300 golfers took to the links in The Prieber Open, to honor the memory of Christopher Priebe and raise awareness for amyloidosis. He was diagnosed in October 2015 and passed in February 2016. Chris loved cigars, golf and Grand Marnier. His wife Johna wanted to share his spirit for life and raise funds for others struggling with this rare disease.  The event raised thousands of dollars for the Amyloidosis Foundation Research Grant Program and we are so grateful for their support.

Johna & friend

The weather was unpredictable but the sun finally came out as well as a rainbow (see below). Rainbow

The two golf courses used were in Livonia, MI – Fox Creek and Whispering Willows. Players enjoyed lunch donated by Panera and a steak dinner to end the day. Friends of Chris had fun during many of the contests throughout the day plus a chance to win one of the gift baskets.

Thank you to all the volunteers and generous family and friends for making this day so special.

Prieber Group

Join us next year on August 12, 2017. Golf muscles


Golf for Amyloidosis!

Golf for Amyloidosis!

The Clarkston Area Chamber of Commerce produced a video to promote our annual golf outing on September 30, 2016 at the Fountains in Clarkston, MI.

Please join us for a fun event!

Register here.

Kelli’s 50th #4Tres a Huge Success!

Kelli’s 50th #4Tres a Huge Success!

Kelli Heald celebrated her 50th birthday on August 18 & raised over $11,000 for the AF, and most importantly – honored the memory of her husband, Tres.

Grp photo

Thank you to everyone who donated and joined her at Grit Cycle in Costa Mesa, CA. We also appreciate the support of these local businesses: Cafe Gratitude, Nekter, Happy Dough and Ink & Think.


If you still would like to make donation in honor of her birthday, please use this link.